The voices of TTP: Patients share their stories

Each person with thrombotic thrombocytopenic purpura (TTP) has a unique experience and story to tell. Saida and Jo explain their challenging journeys to diagnosis and what living with TTP has been like. Claudia shares her thoughts as a care partner to her adult daughter with TTP.

Saida's TTP story

Saida shares her road to diagnosis of TTP, the impact of her condition, and her hope for the future.

My hope for the future is that every patient that has TTP gets treated quickly and efficiently.

Jo's TTP story

Jo discusses her journey living with TTP and how she manages the challenges of the disease.

Dont delayif you do feel youre relapsing and youre seeing lots of bruising or the pinprick rash, then dont be scared. Go and see a doctor because the sooner you get it treated, the better the outcome.

Claudia's perspective

Claudia shares how healthcare professionals can further help patients and care partners.

Just listen to her and let her bring whoever she needs there to help her, support her.

Currently evaluating a patient for TTP? Diagnose quickly and treat proactively using the ISTH TTP Guidelines.

Hear TTP experts share their clinical experiences with TTP.

The risks of TTP—including refractory disease and recurrence (exacerbation or relapse)—extend beyond the first event and can affect prognosis.