Legal Notice

Last Modified (October 2022)

This Website is intended for use by medical professionals, as well as patients and caregivers, in certain countries, based on the user’s selected self-identification in the initial pop-up window when opening the Website. You acknowledge that you have selected your correct and applicable audience status when proceeding beyond the initial pop-up window.

This Website, including any advice and recommendations on the Website, is intended solely as a general educational aid.

The information on this Website is not intended as medical or healthcare advice, or to be used for medical diagnosis or treatment, for any individual problem. It is also not intended as a substitute for professional advice and services from a qualified healthcare provider familiar with the patient. Always seek the advice of your doctor or other qualified healthcare provider regarding any medical condition and before starting any new treatment. Your use of the site is subject to the additional disclaimers and caveats that may appear throughout the Website.

We assume no responsibility for any consequence relating directly or indirectly to any action or inaction you take based on the information, services, or other material on the Website. While we strive to keep the information on the Website accurate, complete, and up-to-date, we do not give any assurances, and will not be responsible for, any damage or loss related to the accuracy, completeness, or timeliness of the information on the Website.

The Website may offer opinions by experts and patients consulted in a particular field in relation to the content of the Website or extracts from articles. Such information solely represents the opinion of the expert or patient consulted or the article and is not necessarily the opinion of the Site Owner. Site Owner is not responsible for the accuracy or completeness of any such information and opinions. An expert or patient opinion reflects only the personal view of that expert or patient, and in no case shall it be regarded as the opinion or responsibility of Site Owner.

The Website is not intended to be used to report health concerns, side effects or product technical complaints, or to ask technical or medical questions regarding products of Site Owner.

You understand that the Website is available for your personal, non-commercial use only. You agree that the Website is the property of the Site Owner; including all intellectual property rights in it and that you have no right to use them other than as set out in these Terms of Use. We are not responsible for any harm or loss that you suffer in relation to any use you make of the Website for any business purposes or other purposes not authorized under these Terms of Use. We reserve the right to refuse or terminate access to the Website at our discretion. The Website is provided free of charge and on that basis we have no obligation to provide any maintenance or support services in relation to it and we are not responsible for any loss or damage you may suffer as a result of any failure to maintain or update the Website.

You may not copy, change or reuse the Website, make any updates to it or any part of it including the software incorporated in them.

You may use this Website only for lawful purposes and in accordance with these Terms of Use. You are granted a nonexclusive, nontransferable, revocable, limited license to view the Website for your personal, noncommercial purposes. You may not copy, reprint, modify, display, perform, translate, distribute, adapt, broadcast, communicate to the public by telecommunication, circulate, or sell the content retrieved from the Website in any way, for any commercial use or provide it to any commercial source, including other websites, without the prior written permission of Site Owner.

In addition, you agree not to:

1. use this Website in any manner that could disable, overburden, damage, or impair this Website, or interfere with any other use of this Website, including, any user‘s ability to engage in real-time activities through this Website;
2. use any robot, spider or other automatic device, process or means to access this Website for any purpose, including to scrape, data mine, monitor or copy any of the material on this Website;
3. use any manual process to monitor or copy any of the material on this Website, or to engage in any other unauthorized purpose without the express prior written consent of Site Owner;
4. otherwise use any device, software or routine that interferes with the proper working of this Website; or
5. otherwise attempt to interfere with the proper working of this Website.

We reserve all rights not expressly granted to you.

The information that we obtain through your use of the Website is subject to our Privacy Policy (the privacy policy here). Our Privacy Policy addresses our collection and use of the data you provide to us, including your rights relative to that information.

To the extent personal data is obtained through the website, Genzyme Corporation is data controller for the processing of that personal data.

Genzyme Corporation:
450 Water Street,
Cambridge,
Massachusetts 02141
Tel.: +1 (617) 252-7500

Amazon Web Services Ireland Limited
One Burlington Plaza, Burlington Road, Dublin 4, Ireland

The information communicated on the Website constitutes an electronic communication. When you communicate with us through the Website or via other forms of electronic media, such as e-mail, you are communicating with us electronically. You agree that we may communicate electronically, subject to local privacy laws, and that such communications, as well as notices, disclosures, agreements, and other communications that we provide to you electronically, are equivalent to communications in writing and shall have the same force and effect as if they were in writing and signed by the party sending the communication.

The Website is provided on an “as is” and “as available” basis. Except as specifically provided herein, to the fullest extent permissible pursuant to applicable law, Site Owner expressly disclaims all warranties of any kind, whether express, legal or implied, including, without limitation, any warranties of merchantability, fitness for a particular purpose and non-infringement.

Site owner does not make any warranty that the Website will meet your requirements, or that access to the Website will be uninterrupted, timely, secure, or error-free, or that defects, if any, will be corrected. Site owner makes no warranties as to the results that may be obtained from the use of the Website or as to the accuracy, quality, or reliability of any information obtained through the website.

You understand and agree that any material and/or data downloaded or otherwise obtained through the use of the Website is used at your own risk and that you will be solely responsible for any damage to your computer system or loss of data that results from the download of such material and/or data.

No advice or information, whether oral or written, obtained by you from Site Owner or through the Website shall create any warranty not expressly made herein.

The Site makes use of “cookies”. Some cookies are necessary to make this site available to you, other cookies enable us to analyze and measure audience and traffic to the site. Cookies also are used by us, advertisers and other partners to serve ads that are more relevant to your interests. Some of these cookies may require your prior permission. For more information and to see which cookies we use, please review our Cookie Statement.

You expressly understand and agree that under no circumstances will Site Owner, its affiliates and any of their respective directors, officers, employees, agents, mandataries or other representatives be liable for direct, indirect, special, incidental, consequential, punitive or aggravated damages, including, without limitation, any loss of use, loss of income, saving or profits, loss of data, loss of goodwill, cost of procurement of substitute services, or any other indirect, special, incidental, or consequential damages, howsoever caused, and on any theory of liability, whether for breach of contract, tort (including negligence and strict liability), or otherwise resulting from (1) the use of, or the inability to use, the Website; (2) the cost of procurement of substitute services, items, or websites; (3) unauthorized access to or alteration of your transmissions or data (including personal information); (4) the statements or conduct of any third party on the Website; or (5) any other matter relating to the Website. These limitations will apply whether or not Site Owner has been advised of the possibility of such damages and notwithstanding any failure of essential purpose of any limited remedy. This exclusion of liability shall apply to the fullest extent permitted by applicable laws.

The trademarks and brand names displayed on this Website are the property of Site Owner, its affiliates or third-party owners. You may not use or display any trademarks or service marks owned by Site Owner without our prior written consent. You may not use or display any other trademarks or service marks displayed on this Website without the permission of their owners.

We will make reasonable efforts to make the Website available, but we may from time to time need to interrupt, restrict, modify or discontinue, temporarily or permanently the Website or parts of it without notice. We will not be responsible for any harm or loss you may suffer as a result of such actions.

We may at any time terminate your use of or access to the Website if we have a good reason to do so which includes any breach by you of these Terms of Use and any other relevant guidelines. We will not be responsible for any loss or harm you may suffer as a result of termination of your use of the Website in these circumstances. In the event of any termination you must stop using the Website and you agree that the provisions of the Agreement regarding Ownership, Trademark Notices, Indemnification, Disclaimer or Warranties, Limitations of Liability, and Applicable Law shall survive any such termination.

This Website may contain links or references to third party websites. These links are provided for your convenience only. No endorsement of any third-party products, services or information is expressed or implied by any information, material or content of any third party contained in, referred to, included on, or linked from or to this Website. Any information, data, opinions, recommendations, products or services provided by such third parties through links to other websites or otherwise made available through their websites are solely those of such third parties and not of Site Owner. Your use of such third-party websites is subject to the terms of use and the privacy policies of such websites.

You agree to indemnify and hold harmless Site Owner and its affiliates and their respective directors, officers, employees, agents, or other representatives from and against all claims, liability, damages and expenses, including without limitation all legal fees and costs arising from or relating to (a) your breach of these Terms of Use; (b) your use of this Website including without limitation transmission or placement of information or material by you on this Website; and (c) any claim or allegation that your use of this Website infringes the intellectual property or other proprietary rights, or privacy rights, of any third party.

We may make changes to the Terms of Use from time to time in our sole discretion, by updating these Terms of Use on this Website, and specifying the effective date of the new version of the Terms of Use. The “Last Modified” date at the top of these Terms of Use will indicate when the latest changes were made. Your continued use of the Website following the posting of a new version of the Terms of Use constitutes your acceptance of any such changes. Accordingly, whenever you visit this Website, you should check to see if a new version of the Agreement has been posted.

If you have any questions or concerns with respect to these Terms of Use or the Website you may contact us as identified in the Contact Us section of this Website.

Should any part or provision of these Terms of Use be held unlawful, void, invalid, or unenforceable that portion shall be deemed severable from these Terms of Use and shall not affect the validity and enforceability of any remaining provisions.

All Sections shall survive the termination of the right to use the Website.

The information on the Website is intended for the audiences specified above in the Website Intended Audience Section. The Agreement and the resolution of any dispute related to the Agreement, the Website, or items you purchase through the Website, and any non-contractual obligations arising out of or in connection with these Terms of Use, shall be governed by and construed in accordance with the laws of the Commonwealth of Massachusetts in the United States of America and you agree to submit to the personal and exclusive jurisdiction of such courts.